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Project Name: Family Professional Partnership/CSHCN (H84)
Applicant Title: TENNESSEE DISABILITY COALITION
Abstract Text: Project Title: Tennessee Family-to-Family Health Information Center Applicant Organization Name: Tennessee Disability Coalition (Family Voices of TN) Address: 955 Woodland Street, Nashville, TN 37209 Project Director: Kara Adams Boo Contact Phone Numbers (Voice, Fax): Phone: xxx-xxx-xxxx; Fax: xxx-xxx-xxxx Email: xxxxxxxxxxxx@xxxxxxxxxxxx.xxx Websites: www.familyvoicestn.org www.tndisability.org Problem: Family Voices of Tennessee (FVTN) and The Tennessee, Department of Health, Division of Family Health and Wellness (Title V) have collaborated to survey families, conduct focus groups, and use current experience to identify the needs for families and professionals relative to optimal health for children and youth with special health care needs (CYSHCN). They include: (1) access to a medical home for CYSHCN and their families, (2) increased knowledge of medical home and systems of care and navigation skills for families, particularly those who are underserved and/or under-resourced, and (3) increased collaborative decision-making between CYSHCN/their families and health care professionals. Goals and Objectives: This proposal will strengthen and improve the TN F2F HIC, and address identified needs. The goals for our work over the next four years are to: (1) increase the knowledge and skills of families of CYSHCN (2) increase family engagement in healthcare systems; and (3) increase collaboration with healthcare professionals. Objectives of each goal focus on achieving outcomes by conducting effective outreach, engaging key stakeholders, providing information, education, technical assistance, and peer support to CYSHCN, their families, and the professionals who serve them. Methodology: The project will serve CYSHCN and their families in Tennessee with a special emphasis on underserved, under-resourced families and communities, due to cultural, ethnic, language, racial, socioeconomic, geographic or other challenges. Building on the successful methods of our current health information center, we will conduct outreach to families and professionals and disseminate information, materials, and resources though a variety of means, using collaborative partnerships with other child-serving organizations. Using parent mentors and staff, families will be provided individual support and guidance, and health navigation assistance. A strong training program for families and professionals using synchronous and asynchronous methods will address identified needs. Coordination: F2F HIC activities are closely coordinated with the Title V (MCHB) program, as well as other family-based and health professional organizations, and children’s hospitals and clinics. Evaluation: An established system of data collection and analysis are used throughout the project to monitor activities, inputs, and performance. Both process and outcomes will be evaluated. Changes and adjustments will be made as needed.